Get Involved

There are many ways to get involved in the fight to find a cure for all those living with Duchenne or associated dystrophinpathies, and make better tomorrows for our community.

Be the change you want to see in the world - Gandi.

Join the Registry

If you are a person or family living with Duchenne or an associated dystrophinopathie (this means if you or your child / children have Duchenne or Becker or are a carrier of these conditions), then you are eligible to enrol in the Australian Neuromuscular Disease Registry (ANMDR) based at the Murdoch Children's Research Institute (MCRI). Your data is essential to build a comprehensive database, to inform decision makers, clinicians, researchers, and industry nationally and internationally to work in collaboration to discover new therapies, inform the decision makers on access to new therapies and the care, quality of life needs of our community, and advance scientific knowledge. Join today.

Visit the registry

Donate

Your generous donation will help Duchenne Australia to fund vital research, advocacy programs and ultimately change the lives of all those living with Duchenne or an associated dystrophinopathie and their families across Australia. We cannot do this without your support, so thank you for being part of the fight by donating today.

Donate Now

Fundraise for us

Your support and fundraising efforts will help Duchenne Australia to fund vital research, advocacy programs and ultimately change the lives of all those living with Duchenne or an associated dystrophinopathie and their families across Australia. Whether you plan to run, cycle or walk there are endless ways to get involved so share your idea or for some inspiration of ways to get involved please send us an email. We cannot do this without your support, so thank you for being part of the fight by fundraising for us today.

Send us an email

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Have more questions?

Come chat to us, we are always happy to take enquiries.